Contact us:  48, Montague Road,

Cambridge,

CB4 1BX

 

Email:  info@akpa.org.uk

 
 
 

News from AKPA

 

March 2017

Rare Bird Raises Funds


Dr Meryl Griffiths had the good fortune to find a dipper in her garden. Although not rare in other parts of the country this little bird has only been recorded twice before in Cambridgeshire. The Royal Society for Protection of Birds was very excited about his appearance and arranged for groups of bird watchers to come and see him. The RSPB practice is to ask for a donation to a nominated charity in return for coming into someone’s garden and Dr Griffiths nominated AKPA.

 

She had visits from groups of Cambridgeshire members of the Royal Society for the Protection of Birds and each time the little bird turned up on cue. As a result she collected a total of £195 for the AKPA.

 

Our thanks to Dr Griffiths and her Dipper.

 

 

 

March 2017

Patient View: Technical Problems Persist


Patient View is a national database of kidney patient medical records which most renal units in the UK have subscribed to for some years. It allows kidney patients to access their blood test results quickly and easily very soon after having tests. It also allows patients to share their results and other medical records with their GPs and with other doctors when they are on holiday or working away from home.

 

A group of five kidney patients has been helping to trial Patient View at Addenbrooke’s, but a succession of computer problems has prevented their data from being uploaded to Patient View on a continuous basis. When it is working, the group enjoys seeing their test results appear quickly and they are enthusiastically looking forward to the time when other kidney patients at Addenbrooke’s can benefit. However, until the technical problems are ironed out, and data upload becomes quick and consistent, the system is not yet ready to roll out to all kidney patients.

 

Dr Afzal Chaudhry, Nephrologist and IT Lead for Addenbrooke’s, says, “We are undertaking a lot of work internally to re-adjust the flow of data to the Renal Registry and Patient View. There is still a reasonable amount to do and we are still formulating the fine detail on some of this.” Dr Chaudhry is not able to give a timeline on this work or the eventual roll-out, but he remains very positive and confident that the problems will be overcome.

 

For readers interested to know how Patient View works, please go to www.patientview.org.

 

Alan Craig

 

 

 

March 2017

Where the Money Goes


Over the last year AKPA has continued providing welfare support for sick and needy patients and their families. We also provided food, gifts, Christmas trees and decorations for unit patients dialysing over the Christmas holidays.

 

We also funded exercise machines and physiotherapists for our major project, the Dialysis Exercise programme which is currently on hold but will hopefully restart shortly.

 

The Association sponsored patients to attend the NKF conference, and in order to publicise organ transplantation, we supported the National Transplant Games. In conjunction with ALTA (Addenbrooke’s Liver Transplant Association) we continued funding therapeutic massage for patients in the transplant wards. We also funded wristbands for dialysis patients.

 

Following the dialysis centre’s move last year we funded a water boiler, and benches and planters for the front of the building. Also, food and entertainment for a celebration of the first year at the new unit.

 

 

 

December 2016

Mill Road Winter Fair


Mr and Mrs Raj Gharu once again supported AKPA at their Cambridge Newsagents, Lallys News during the annual Mill Road Winter Fair.

 

The Gharus sold delicious Indian snacks from a stall in front of their shop and generously donated all the proceeds, which totalled £1,000, to AKPA.

 

Our thanks to Mr and Mrs Gharu for all their hard work and for the stream of very well filled collecting tins they regularly send to us.

 

 

 

 Newsflash, Our Newsletter

 

Newsflash is the award-winning newsletter of Addenbrooke's Kidney Patients Association. It is published regularly to help widely-scattered members keep in touch with their Association and each other.

 

Like all our activities it relies on the members themselves to provide the impetus and the material; so if a funny thing happened to you on the way to your dialysis centre or you have a useful tip on dialysing, if you have discovered a helpful holiday hotel or even have a horror story to relate, please share it with us. Contributions should be sent to newsflash@akpa.org.uk

 

Click here to view the current issue of Newsflash

 

 

 

 

 Newsflash Back Issues

 

An archive of previous editions of Newsflash:

 

   

 

 

 
 

 

The AKPA website is provided by Addenbrooke's Kidney Patients for Addenbrooke's Kidney Patients and is for information purposes only. It should not be a substitute for professional medical advice,

examination, diagnosis or treatment. Do not disregard or delay seeking medical advice based on information on this site. If you have concerns, always seek the advice of one of the Renal Team

at Addenbrooke's before starting any new treatment or making any changes to existing treatment. Medical information and the staff in the Renal Department change occasionally and while AKPA make

efforts to continually update the content on the site, some information may be out of date. To advise us of incorrect information, please email web.master@akpa.org.uk

 


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